I haven’t spoken much about my endometriosis, autoimmune diseases and my chronic health issues. These go hand-in-hand with my grief. I plan to start sharing this journey as well.
Haven’t You Heard? It’s Endometriosis Awareness Month! Men This Is For You Too!
Do you know what Endometriosis is? Have you ever heard that word spoken out loud? Do you know how to pronounce it? Can you spell it without spell check?
Mar 12, 2026
Do you know what Endometriosis is? Have you ever heard that word spoken out loud? Do you know how to pronounce it? Can you spell it without spell check?
Endometriosis (en·dow·mee·tree·ow·suhs) sometimes referred to as endo.
I’ve known this word since I was at least 14 and I’m 40 now. I’ve known what it was because my mother had it when I was that age. She didn’t have as much pain as I did but she had other issues, like I also have or had. I had surgery (which I will write about next) that ended my struggles with other diseases that, combined with endometriosis, made my life a living hell. Yet, when I was officially diagnosed, I cried with relief like so many others in videos I’ve seen in the past year or two. We don’t cry because we are happy that we have this debilitating disease that changes every aspect of our lives. We’ve already been living that way, in pain and wishing for it to end or worse, our lives to end. We cried because we already knew we had it. We already knew we needed help. We were just dismissed repeatedly or just ignored. Again, for me it took over 20 years to get diagnosed while for the average woman it takes almost 10 years.
When I say “wish for our lives to end”, this isn’t dramatic or overstating the situation. Women and young girls have taken their lives because the pain was so unbearable and medical professionals refused to take them seriously. I’ve had numerous moments in my pain that I couldn’t see a way out besides taking my own life. I don’t know what kept me pushing through the fog of exhaustion and confusion, but I’m still here. I’m still fighting for my voice and millions of other people’s voices to be heard. We deserve a place in the world of research, of medical treatment and simply a place to just be where we are seen and believed.
Endometriosis isn’t just a reproductive disease as many people have stated in the past. It has been found all over the body including the brain, lungs, intestines, appendix, rectum, bladder, and other places. Endometriosis is an estrogen-dependent disease and research has shown that it can create its own estrogen! Yes, you read that right. It is not considered a cancer but it sure likes to act like it. It’s extremely aggressive and spreads quickly. That is why it’s found in so many different places of the body.
Imagine for a moment, a teaspoon of cement got poured on the outside of your intestines in a few places. It’s hardened and set in place. Now, as you know, our intestines move as we digest our food but wait, parts of your intestines can’t move because they have cement on them but they still try to move. When the food finally has moved past that part and it’s ready to leave your body, cement is also on your rectum. It can’t move like it needs to so it tears a little each time it tries to, and when it successfully passes. Sounds pretty painful, right. Now imagine that’s all over your pelvic floor (yes, you men have pelvic floors too so keep imagining!), oh and maybe a little bit on your diaphragm so when you try to breath while taking a poop, you can’t fully take in a breath. Now, imagine you are told, that’s all in your head and you “just” have anxiety. Here’s some meds to help with your mental health but nothing to help with your actual physical pain.
Endometriosis isn’t researched or funded enough and as you can see, it’s life destroying. Demand that research is done for this horrific disease. You can reach out to your representatives to see where they stand and demand that they support research for it. Be part of the treatment and hopefully a cure that so many need. Before we lose another person because the pain is too much to handle.


